by Nora McNairney | Sep 13, 2021 | Blog
As part of our work celebrating IPWSO’s 30th Anniversary in 2021, we asked members of the global PWS community to make films to highlight the challenges they face, as well as the achievements and developments that are happening around the world. We hope you...
by Nora McNairney | Sep 7, 2021 | Blog
Urs Eiholzer from the Centre for Paediatric Endocrinology, Zurich and member of our Clinical and Scientific Advisory Board tells us more about the latest research into PWS and Hypogonadism: Although hypogonadism is prevalent in males and females with PWS, knowledge...
by Nora McNairney | Sep 2, 2021 | Blog
Verena Gutmann, chair of our Famcare Committee introduces our latest publication: In our newest Famcare article you can read about the importance of a well-structured day for adults with PWS and the main features to be considered when embarking on such activities. We...
by Nora McNairney | May 14, 2021 | Blog
Lauren’s story has not been an easy one – on Lauren – or her family. Her mum Joanne told us more… Lauren is a twin – the youngest of five children. From Lauren’s diagnosis, at four months, our family threw ourselves into supporting...
by Nora McNairney | May 4, 2021 | Blog
Many of the people we work with at IPWSO observe the month of Ramadan. How does the period affect families and in particular how does the aspect of fasting affect people with PWS? Azhar Talib from PWS Malaysia told us more: Fasting during the month of Ramadan is a...
by Nora McNairney | May 4, 2021 | Blog
My name is Nikolinka Yordanova. I am a pediatric endocrinologist and core specialist of our PWS Multidisciplinary team at the First Pediatric Clinic, University Hospital “Sveta Marina“ in Varna, Bulgaria. The head of our Department, Prof. Violeta Iotova has...
