The Clinical and Scientific Advisory Board (CSAB) of IPWSO has published a new version of the document: “Sex hormones, fertility and sexuality in Prader-Willi syndrome”.

In the article you can read about treatment with sex hormones in PWS and the effects of sex hormones. Also included is what we know about sexuality and information on the four documented pregnancies in women with PWS.

The CSAB is aware of the many questions on these issues and we would be very happy to receive your comments.

In particular, we are interested to increase the knowledge on fertility and ask you to email us any information you have about pregnancies in women with PWS and if you know of a man with PWS who has fathered a child.

Charlotte Höybe, CSAB, February 2021