by Nora McNairney | Aug 26, 2022 | Blog
The Professional Providers and Caregivers Board of IPWSO recently conducted a survey looking for evidence of employment and work placements opportunities for people with PWS around the world. The responses from the survey revealed the following points. Opportunities...
by Nora McNairney | Jun 14, 2022 | Blog
El pasado 31 de mayo se inauguró la primera residencia especializada para personas con Síndrome de Prader-Willi en España. A la inauguración asistió la Ministra de Sanidad, Carolina Darias, junto con autoridades regionales y locales. La residencia, denominada “Mil...
by Nora McNairney | Mar 25, 2022 | Blog
PWS China has recently joined IPWSO, we asked them to tell us a bit about their work and mission: Prader-Willi Syndrome Care & Support Center, China Since 2017 the Prader-Willi Syndrome Care & Support Center (China) has supported people with PWS in the...
by Nora McNairney | Mar 24, 2022 | Blog
An interview with Gary Brennan, National Development Manager, Prader-Willi Syndrome Association of Ireland, on the International Prader-Willi Syndrome Organisation Conference 6-10 July 2022, Limerick, Ireland How does it feel to be the host for the next international...
by Nora McNairney | Mar 1, 2022 | Blog
The presentation, course and outcome of COVID-19 infection in people with Prader-Willi syndrome: unexpected findings from an international survey J. E. Whittington, A. J. Holland, D. J. Driscoll, N. Hodebeck-Stuntebeck & A. Hoctor Orphanet Journal of Rare Diseases...
by Nora McNairney | Feb 21, 2022 | Blog
It’s one week until Rare Disease Day which takes place on Monday 28th February. Rare Disease Day is, “the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living...
