by IPWSO | May 11, 2022 | News
IPWSO Support for the People of Ukraine The continuing suffering of the people of Ukraine is a cause of great sadness to IPWSO. We have watched from afar as the horror of this war unfolded and are conscious of the tremendous injustice, hardship, and anxiety that...
by IPWSO | Mar 25, 2022 | Blog
PWS China has recently joined IPWSO, we asked them to tell us a bit about their work and mission: Prader-Willi Syndrome Care & Support Center, China Since 2017 the Prader-Willi Syndrome Care & Support Center (China) has supported people with PWS in the...
by IPWSO | Mar 24, 2022 | Blog
An interview with Gary Brennan, National Development Manager, Prader-Willi Syndrome Association of Ireland, on the International Prader-Willi Syndrome Organisation Conference 6-10 July 2022, Limerick, Ireland How does it feel to be the host for the next international...
by IPWSO | Sep 13, 2021 | Blog
As part of our work celebrating IPWSO’s 30th Anniversary in 2021, we asked members of the global PWS community to make films to highlight the challenges they face, as well as the achievements and developments that are happening around the world. We hope you...
by IPWSO | Feb 22, 2021 | Blog
Here at IPWSO we are celebrating the lives of people with Prader-Willi syndrome this Rare Disease Day 2021! The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on peoples’...
