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PWS and self-determination

PWS and self-determination

Prader-Willi France held its 25th national day on 15th October 2022, gathering together more than 220 families and professionals. The theme was self determination under the title “What about my opinion?”. Two children and two adults with PWS addressed the...
A Mother’s Experience: new report out

A Mother’s Experience: new report out

A Mother’s Experience: a report on the social and psychological experiences of mothers raising children with Prader-Willi syndrome At IPWSO, we engage with families from all backgrounds and cultures to provide support for people with Prader-Willi syndrome globally. It...
Inaugurada la primera residencia especializada para personas con Síndrome de Prader-Willi en España / Opening of the first group home designed for people with Prader-Willi syndrome in Spain

Inaugurada la primera residencia especializada para personas con Síndrome de Prader-Willi en España / Opening of the first group home designed for people with Prader-Willi syndrome in Spain

El pasado 31 de mayo se inauguró la primera residencia especializada para personas con Síndrome de Prader-Willi en España. A la inauguración asistió la Ministra de Sanidad, Carolina Darias, junto con autoridades regionales y locales. La residencia, denominada “Mil...
IPWSO Support for the People of Ukraine

IPWSO Support for the People of Ukraine

IPWSO Support for the People of Ukraine The continuing suffering of the people of Ukraine is a cause of great sadness to IPWSO.  We have watched from afar as the horror of this war unfolded and are conscious of the tremendous injustice, hardship, and anxiety that...
Welcome to PWS China!

Welcome to PWS China!

PWS China has recently joined IPWSO, we asked them to tell us a bit about their work and mission: Prader-Willi Syndrome Care & Support Center, China Since 2017 the Prader-Willi Syndrome Care & Support Center (China) has supported people with PWS in the...