by Agnes Hoctor | Dec 2, 2022 | Blog
Our Famcare Board has written a fantastic collection of guides to help families navigate the key issues affecting people with PWS. A guide to rituals and obsessions A guide to the transitional years Basics of a healthy adult lifestyle Confabulation / story telling...
by Agnes Hoctor | Nov 4, 2022 | News
Prader-Willi France held its 25th national day on 15th October 2022, gathering together more than 220 families and professionals. The theme was self determination under the title “What about my opinion?”. Two children and two adults with PWS addressed the...
by Agnes Hoctor | Oct 20, 2022 | Blog
A Mother’s Experience: a report on the social and psychological experiences of mothers raising children with Prader-Willi syndrome At IPWSO, we engage with families from all backgrounds and cultures to provide support for people with Prader-Willi syndrome globally. It...
by Agnes Hoctor | Jun 14, 2022 | Blog
El pasado 31 de mayo se inauguró la primera residencia especializada para personas con Síndrome de Prader-Willi en España. A la inauguración asistió la Ministra de Sanidad, Carolina Darias, junto con autoridades regionales y locales. La residencia, denominada “Mil...
by Agnes Hoctor | May 11, 2022 | News
IPWSO Support for the People of Ukraine The continuing suffering of the people of Ukraine is a cause of great sadness to IPWSO. We have watched from afar as the horror of this war unfolded and are conscious of the tremendous injustice, hardship, and anxiety that...
