by Nora McNairney | Jun 24, 2024 | News
Things never stay the same, and that’s no different for IPWSO! Next year, we’ll see some of our Trustees complete their tenure of office and we’ll welcome new officers to the IPWSO Board. Thankfully, ex-officers never stray too far from our PWS community and remain...
by Nora McNairney | Jun 24, 2024 | Blog
As we embark on an new era at IPWSO, Marguerite Hughes, Chief Executive Officer, reflects on her role and looks forward to IPWSO’s continuing growth and success. In 2025 I will be stepping down as IPWSO CEO. I will miss it greatly, in large part because every...
by Nora McNairney | May 8, 2024 | News
We have launched a new round of funding for families and professionals to organise PWS projects in countries where they are needed most. IPWSO is offering microgrants for small projects to support the efforts of individuals and groups who are working to improve the...
by Nora McNairney | May 8, 2024 | News
New round of funding for PWS Conference and Workshops to be announced soon! Thanks to the support of Friends of IPWSO (USA), the IPWSO Grants Committee is able to offer funding to individuals and groups who are interested in planning and hosting a PWS event to...
by Nora McNairney | Apr 10, 2024 | Blog
European Hormone Day returns for a third time on Wednesday, 24 April, uniting the endocrine community across Europe and beyond to raise awareness of the vital role of hormones in health and disease – #BecauseHormonesMatter. Here at IPWSO, we are supporting European...
by Nora McNairney | Apr 8, 2024 | Blog
Advocating for Hope: IPWSO’s Impact at 2024 African Society for Pediatric and Adolescent Endocrinology (ASPAE) Conference In the realm of rare diseases, every opportunity to connect, advocate, and educate is invaluable. This rings particularly true in relation...
by Shelly Cordner | Jan 12, 2024 | Blog
IPWSO is this month entering the latest phase of its development with the launch of its Strategic Plan 2024-2026. It describes the guiding values that unite our organisation and charts an ambitious way towards our ultimate goal of a world where all people with...
by Nora McNairney | Dec 21, 2023 | Blog
Karen tells us about her daughter Andrea, the challenges of PWS that the family have faced together, and how Andrea is doing now as she reaches the age of 40. This is my daughter, Andrea Agnew and on December 14th we celebrated her 40th birthday. She was born with...
by Nora McNairney | Dec 13, 2023 | News
We are looking for a Fundraising and Communications Manager to join our team. Remote working (must be UK based) £31,000 per annum pro rata (£16,534) Part-time (20 hours per week) Contract (12 months) Closing date is 12 January 2024 at 23:30 (UK time) We’re looking for...
by Nora McNairney | Dec 8, 2023 | Blog
IPWSO President Tony Holland talks about the role he has held since 2016 and encourages nominations for his successor in 2025. IPWSO works on three yearly cycles. The international conference and the IPWSO general assembly happens every three years and the President...
