by Nora McNairney | Oct 17, 2022 | Blog
Thanks to Global Genes we have been able to provide some new translations to benefit the Turkish-speaking PWS community. The International Prader-Willi Syndrome Organisation (IPWSO) is a recipient of the 2022 Health Equity in RARE Patient Impact Grant sponsored by...
by Nora McNairney | Oct 13, 2022 | Blog
Thanks to Global Genes we have been able to provide some new translations to benefit the PWS community in Arabic-speaking regions. The International Prader-Willi Syndrome Organisation (IPWSO) is a recipient of the 2022 Health Equity in RARE Patient Impact Grant...
by Nora McNairney | Oct 13, 2022 | Blog
Thanks to Global Genes we have been able to provide some new translations to benefit the PWS community in China. IPWSO is a recipient of the 2022 Health Equity in RARE Patient Impact Grant sponsored by Global Genes. Thanks to this award, IPWSO’s project entitled...
by Nora McNairney | Sep 22, 2022 | Blog
We were delighted to jointly host a webinar on 8th September 2022 with the African Society for Paediatric and Adolescent Endocrinology. We welcomed 50 participants from around the continent of Africa (and beyond) to a webinar to discuss the endocrinology of...
by Nora McNairney | Aug 26, 2022 | Blog
The Professional Providers and Caregivers Board of IPWSO recently conducted a survey looking for evidence of employment and work placements opportunities for people with PWS around the world. The responses from the survey revealed the following points. Opportunities...
by Nora McNairney | Jun 14, 2022 | Blog
El pasado 31 de mayo se inauguró la primera residencia especializada para personas con Síndrome de Prader-Willi en España. A la inauguración asistió la Ministra de Sanidad, Carolina Darias, junto con autoridades regionales y locales. La residencia, denominada “Mil...
