by Shelly Cordner | Mar 27, 2025 | Blog
Beat the Heat in Arizona! As we count down the days to the United in Hope: International PWS Conference in Phoenix, AZ, our excitement at gathering with many families from the PWS community grows! We’ll be spending time with old friends, making new ones, and...
by Nora McNairney | Sep 13, 2024 | Blog
Jacob Evan Yashinsky-Zavitz lived his life with enormous courage and humour, dealing every day with the intense hunger known as hyperphagia that accompanies Prader-Willi Syndrome. In creating a rich and meaningful life for himself, he also became a wise advocate for...
by Nora McNairney | Jun 24, 2024 | Blog
Our President’s Reflections I am of an age and a generation where blogs and social media remain a bit of a mystery. I also remember a ‘pre-google era’ when the local library or the school library were the main sources of information – yes there...
by Nora McNairney | Jun 24, 2024 | Blog
As we embark on an new era at IPWSO, Marguerite Hughes, Chief Executive Officer, reflects on her role and looks forward to IPWSO’s continuing growth and success. In 2025 I will be stepping down as IPWSO CEO. I will miss it greatly, in large part because every...
by Nora McNairney | Apr 10, 2024 | Blog
European Hormone Day returns for a third time on Wednesday, 24 April, uniting the endocrine community across Europe and beyond to raise awareness of the vital role of hormones in health and disease – #BecauseHormonesMatter. Here at IPWSO, we are supporting European...
by Nora McNairney | Apr 8, 2024 | Blog
Advocating for Hope: IPWSO’s Impact at 2024 African Society for Pediatric and Adolescent Endocrinology (ASPAE) Conference In the realm of rare diseases, every opportunity to connect, advocate, and educate is invaluable. This rings particularly true in relation...
