Nathalie Kayadjanian

Nathalie Kayadjanian

Co-opted Trustee Nathalie Kayadjanian, Ph.D is an expert in translational biomedical research for rare diseases with extensive experience in academia, biotech, and the pharmaceutical industry in Europe and in the USA. For the past several years, Nathalie has occupied...
Karin Clarke

Karin Clarke

Co-opted Trustee Karin Clarke is the Chairperson of the Prader-Willi Syndrome Support Group of South Africa.  She graduated with a Bachelor’s degree in economics and psychology from the University of Cape Town (UCT).  She worked in Marketing Research, at Kantar TNS...
Lantz Yap

Lantz Yap

Trustee Lantz Yap is a 2 term exco and life member of the PWS Association in Malaysia. He lives in the capital city of Kuala Lumpur with his wife, Jeannie and two children. His son, Ken aged 26 was diagnosed with PWS at birth. He represented Malaysia in bidding for...
Tünde Liplin

Tünde Liplin

Trustee Tünde Liplin is a mother of 2 children. Her firstborn child, a son, Levente who lives with PWS was born in 2011, and she has a daughter, Panna, who was born in 2015. Her professional background is as a financial analyst. After she graduated, Tünde worked hard...
Svetlana Labun

Svetlana Labun

Trustee Ph.D., adult education, Catholic University of Eichstätt-Ingolstadt, 2004. Studies of German and English at the Novosibirsk State Pedagogical University, 1995. Department Manager of special services for 73 people with Prader-Willi Syndrome at Regens Wagner...