by IPWSO | Nov 23, 2021 | Blog
How can we encourage the development of good quality support and care for adults with Prader-Willi syndrome? A blog written by François Besnier for Prader-Willi France and shared with permission. These few lines are personal reflections, inspired and developed...
by IPWSO | Feb 22, 2021 | Blog
Here at IPWSO we are celebrating the lives of people with Prader-Willi syndrome this Rare Disease Day 2021! The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on peoples’...
by IPWSO | Jan 19, 2021 | Blog
Abrazos que hablan. Un Prader-Willi en la familia, escrito por Anna Ripoll, asigna todos los beneficios a la Asociación Catalana SPW para la investigación del síndrome El primer trabajo de Anna Ripoll, expresidenta de la Asociación Catalana SPW, explica la vida de su...
