IPWSO supports Rare Disease Day 2022

IPWSO supports Rare Disease Day 2022

It’s one week until Rare Disease Day which takes place on Monday 28th February. Rare Disease Day is, “the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living...
Celebrating the lives of people with PWS this Rare Disease Day

Celebrating the lives of people with PWS this Rare Disease Day

Here at IPWSO we are celebrating the lives of people with Prader-Willi syndrome this Rare Disease Day 2021!  The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on peoples’...