by IPWSO | Jan 10, 2021 | News
Our Clinical and Scientific Advisory Board has published a collated list of all PWS research papers published from October to December 2020. Download...
by IPWSO | Dec 16, 2020 | News
We attended the webinar “Addressing UHC through Rare Diseases” co-organised by Rare Diseases International and EURORDIS on 11th December 2020… The discussion included a lively exchange on the challenges and potential for Universal Health Coverage to...
by IPWSO | Nov 5, 2020 | News
The International Prader-Willi Syndrome Organisation is looking for a talented and motivated UK-based Project Manager to support its virtual training and meetings including the coordination and facilitation of a series of Project ECHO® telementoring initiatives...
by IPWSO | Nov 5, 2020 | News
IPWSO’s mission in collaborating with the Project ECHO® initiative is to unite the Prader-Willi syndrome (PWS) global community. We want to move knowledge and to reach underserved populations. Collectively, we believe, we can find solutions to the challenges of...
by Nicki Francomb | Oct 23, 2020 | News
Rare Diseases International (RDI) have today published their statement on COVID-19 and the impact on the lives of people with rare disorders and the response that is needed from Governments. IPWSO, as a member of RDI, recognises that people with rare disorders,...
by Nicki Francomb | Oct 5, 2020 | News
Our Clinical and Scientific Advisory Board has published a collated list of all PWS research papers published from July to September 2020. Download...
