IPWSO argues that Growth Hormone treatment should be universally available not just to children but also to adults with PWS.
Our Clinical and Scientific Advisory Board has written to the Editor of the Orphanet Journal of Rare Diseases calling for the use of Growth Hormone treatment to be used more extensively in adults.
Growth Hormone treatment is approved for treatment of children with PWS in many countries, but until recently not as a treatment in young adults in the transition period or for adults in general. The fact that Growth Hormone treatment is now approved for adults with PWS in a few countries is therefore an important milestone.
In the letter the researchers draw attention to the uneven global use of Growth Hormone treatment, specifically in adults with PWS, and advocate for Growth Hormone treatment to be approved internationally, not just for children, but also for adults with PWS and based only on the diagnosis of genetically confirmed PWS.