IPWSO’s mission in collaborating with the Project ECHO® initiative is to unite the Prader-Willi syndrome (PWS) global community.  We want to move knowledge and to reach underserved populations. Collectively, we believe, we can find solutions to the challenges of the syndrome and we can support and advocate for the needs of people with PWS, their families, PWS Associations and professionals who work with people with PWS.

The IPWSO Project ECHO educational programmes currently include a Leadership, a Health and a SPW Latino Américan ECHO.  These are designed to build capacity and expertise in PWS using the ECHO Model™ and an “all teach, all learn approach”.

Registration is now open for our IPWSO Leadership ECHO and our IPWSO Health ECHO.

Further Details:


An online educational programme helping to build a global PWS community.

The Leadership ECHO will be of interest to people who are active in PWS Associations or who are interested in developing associations – parents and professionals.

Starts:                       Tuesday 1 December 2020

Format:                      Online using Zoom Video Conferencing

Duration:                  10 sessions each lasting 90 minutes

Frequency:               To be determined by participants

Numbers:                  Restricted to enable maximum participation

Attendance:              Free for all participants

Sessions will include short and focused presentations, discussions and opportunities for participants to present on the challenges they face in their respective countries.

​FURTHER INFORMATION:          echo@ipwso.org


Together, we can help to build knowledge and centres of excellence in PWS across the world.

People with PWS have complex and changing physical and mental health needs over their lifetime requiring the skills of various health disciplines and a multidisciplinary approach to treatment. The IPWSO Health ECHO will be of interest to a wide range of health professionals including, for example:

Geneticists, Paediatric Endocrinologists, Neonatologists, Nurses, Paediatricians, Endocrinologists, Psychiatrists, Psychologists, Social Workers, Occupational Therapists, Pulmonologists, Orthopaedic Surgeons, Dieticians, Physiotherapists, Speech and Language Therapists, Medical Students and Professional Care Givers.

Starts:                       February 2021

Format:                     Online using Zoom Video Conferencing

Duration:                  10 sessions each lasting 90 minutes

Frequency:               To be determined by participants

Numbers:                 Restricted to enable maximum participation

Attendance:             Free for all participants

Sessions include short and focused presentations on PWS across the lifespan delivered by medical experts and case-based learning arising from de-identified cases presented by participants.

​FURTHER INFORMATION:          echo@ipwso.org

IPWSO SPW Latin Américan ECHO

Starts in March 2021.  Details to follow soon.

​For further information email: echo@ipwso.org

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