by Nora McNairney | Apr 13, 2022 | News
XI Conferencia Internacional IPWSO 2022 (*) University of Limerick – Irlanda 6 al 10 de julio Ya es tiempo que volvamos a reunirnos presencialmente como comunidad global, después de estos difíciles tiempos de pandemia en que hemos estado aislados. IPWSO 2022 ha...
by Nora McNairney | Dec 8, 2021 | News
Has your PWS Association thought about hosting an IPWSO conference? In the past these have been held in the Netherlands, Norway, Italy, USA, New Zealand, Romania, Taiwan, UK, Canada and most recently Cuba. Ireland will host in 2022, maybe you could host in 2025? The...
by Nora McNairney | Sep 29, 2021 | News
We are looking for people interested in joining the IPWSO Board from July 2022. Could you get involved and help guide and support our vital work? Trustees play a crucial role in the work of IPWSO. We are lucky to work with a fantastic group of people on our current...
by Nora McNairney | Aug 18, 2021 | News
The PWS associations of Australia, New Zealand, Malaysia and Thailand have come together to present the 5th Asia Pacific Prader-Willi syndrome conference! The event will be hosted online from 29th to 31st October 2021. We are delighted to be involved in what promises...
by Nora McNairney | Mar 3, 2021 | News
The PWSA USA’s national convention is going online from 22nd to 26th June, 2021. Over the course of five days, attendees will share ideas and experiences while learning from leaders in the field of PWS. The virtual format makes it possible for more families than...
by Nora McNairney | Feb 15, 2021 | News
IPWSO argues that Growth Hormone treatment should be universally available not just to children but also to adults with PWS. Our Clinical and Scientific Advisory Board has written to the Editor of the Orphanet Journal of Rare Diseases calling for the use of Growth...
