by Agnes Hoctor | Oct 20, 2022 | Blog
A Mother’s Experience: a report on the social and psychological experiences of mothers raising children with Prader-Willi syndrome At IPWSO, we engage with families from all backgrounds and cultures to provide support for people with Prader-Willi syndrome globally. It...
by Agnes Hoctor | Mar 25, 2022 | Blog
PWS China has recently joined IPWSO, we asked them to tell us a bit about their work and mission: Prader-Willi Syndrome Care & Support Center, China Since 2017 the Prader-Willi Syndrome Care & Support Center (China) has supported people with PWS in the...
by Agnes Hoctor | Mar 24, 2022 | Blog
An interview with Gary Brennan, National Development Manager, Prader-Willi Syndrome Association of Ireland, on the International Prader-Willi Syndrome Organisation Conference 6-10 July 2022, Limerick, Ireland How does it feel to be the host for the next international...
by Agnes Hoctor | Nov 23, 2021 | Blog
Earlier this month we held a Zoom meeting to bring together the PWS community in Africa. The purpose of the meeting was to share information, create new links and to develop a better understanding of the needs of families living on the continent. IPWSO currently has...
by Agnes Hoctor | Feb 22, 2021 | Blog
Here at IPWSO we are celebrating the lives of people with Prader-Willi syndrome this Rare Disease Day 2021! The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on peoples’...
