by Agnes Hoctor | May 4, 2021 | Blog
My name is Nikolinka Yordanova. I am a pediatric endocrinologist and core specialist of our PWS Multidisciplinary team at the First Pediatric Clinic, University Hospital “Sveta Marina“ in Varna, Bulgaria. The head of our Department, Prof. Violeta Iotova has...
by Agnes Hoctor | Mar 3, 2021 | Blog
When to test for Prader-Willi syndrome (PWS) We often hear from parents and doctors, who ask us at what stage they should suspect a diagnosis of PWS and how to obtain a diagnosis. Here are some of the early signs. For greater detail please visit our What is...
by Agnes Hoctor | Nov 28, 2017 | Blog
40 years awareness of “Rare disease” – Anna and Giuseppe Baschirotto My visit to B.I.R.D. in September 2017 by Verena Gutmann (IPWSO Board Member – Austria) Some weeks ago I visited the B.I.R.D. Institute (Baschirotto Institute of rare disease) in Longare di...
by Agnes Hoctor | Aug 7, 2017 | Blog
By Jackie Gill (UK) It is one of life’s little ironies that before Prader-Willi syndrome (PWS) came into my life I was a very picky eater, and with such a small appetite that I was very underweight until after both my children had been born. My first child was a...
