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Helping carers to understand PWS: Kate’s story

Helping carers to understand PWS: Kate’s story

Kate is an adult living with PWS. In this personal blog she writes about what it is like to have PWS and what she wants other people to know about it.   I am writing this article for carers because I have to educate them more on Prader-Willi syndrome. To help...
Famcare guides for families

Famcare guides for families

Our Famcare Board has written a fantastic collection of guides to help families navigate the key issues affecting people with PWS. A guide to rituals and obsessions A guide to the transitional years After the Diagnosis, Relief and Acceptance Basics of a healthy adult...
Meaningful employment for people with PWS

Meaningful employment for people with PWS

The Professional Providers and Caregivers Board of IPWSO recently conducted a survey looking for evidence of employment and work placements opportunities for people with PWS around the world. The responses from the survey revealed the following points. Opportunities...
Supporting the needs of adults with PWS, now and in the future

Supporting the needs of adults with PWS, now and in the future

How can we encourage the development of good quality support and care for adults with Prader-Willi syndrome?  A blog written by François Besnier for Prader-Willi France and shared with permission. These few lines are personal reflections, inspired and developed...
From Ireland to Munich

From Ireland to Munich

Gina Mullis is a Kiwi, living and working in Ireland.   This was her first experience of a PWS conference and she writes… I was very fortunate to be given the opportunity to attend the IPWSO 5th International Caregiver’s Conference in Munich this year.  It was...