Lesley Robertson

Lesley Robertson

I have been fortunate to be able to advocate for PWS, supported by my husband Don and our family. I have been able to attend Conferences and keep up to date. I have been accepted by Doctors and Caregivers as an equal with lived knowledge of the syndrome. It is a...
Verena Gutmann

Verena Gutmann

Chair, Famcare Board Educational Head of Department  responsible for the Educational Management of 100 youngsters from 14-20 years.  Also responsible for the formation of the Austrian PWS Association and  chairperson for 10 years. Verena was an auditor for IPWSO...
Amalia Balart

Amalia Balart

Famcare Board and IPWSO Adviser Amalia is a Masters graduate in Special Education and has worked as a Bilingual Therapist to help children with attention deficit disorder, poor executive function and learning disabilities. She worked for 26 years as Head of Juniors at...