by Nicki Francomb | Nov 17, 2020
Georgina is based at the Prader-Willi syndrome specialist clinic, Metabolism and Obesity Services at the Royal Prince Alfred Hospital, Camperdown, NSW, Australia. She is involved with the New South Wales PWS Association and now with Prader-Willi Syndrome Australia....
by Nicki Francomb | Nov 17, 2020
Parent of an adult daughter, Jackie is a past IPWSO Board member and has worked with PWSA UK for over 20 years, specialising in writing and producing information, including the UK PWS Journey, and website articles for parents, people with PWS and professional...
by Nicki Francomb | Nov 17, 2020
Vice-Chair Consultant (Neuropediatrics) Susanne has an adult son with PWS.
by Nicki Francomb | Oct 23, 2020
Child & Adolescent PsychiatristPittsburgh PartnershipPittsburgh, PA U.S.A.
by Nicki Francomb | Oct 23, 2020
I have been fortunate to be able to advocate for PWS, supported by my husband Don and our family. I have been able to attend Conferences and keep up to date. I have been accepted by Doctors and Caregivers as an equal with lived knowledge of the syndrome. It is a...
