by Nicki Francomb | Nov 17, 2020
Parent of an adult daughter, Jackie is a past IPWSO Board member and has worked with PWSA UK for over 20 years, specialising in writing and producing information, including the UK PWS Journey, and website articles for parents, people with PWS and professional...
by Nicki Francomb | Nov 17, 2020
Medical genetics doctor in Sausalito, California and is affiliated with UCSF Medical Center. A founding member of IPWSO and Past President, Susie is also a serving board member of PWSA USA
by Nicki Francomb | Oct 23, 2020
Adviser Marcello lives in Atlanta with his wife Andrea and his 2 daughters: Giulia, born in 2003 and diagnosed with PWS shortly after birth; and Nina, born in 2008. Marcello has more than 30 years of experience in senior executive finance roles in leading...
by Nicki Francomb | Oct 23, 2020
Adviser Maria has been, for the past 15 years, the president of the Polish Prader-Willi Association. During this time, the association successfully cooperated with the Polish Ministry of Health and the Polish Society for Paediatric Endocrinology to establish the...
by Nicki Francomb | Oct 23, 2020
Adviser Underscored by a powerful desire to maximize outcomes for all people living with PWS, James’ education, management and operating experience spans national and international charities, special school settings and disability services. James...
