James O’Brien


Underscored by a powerful desire to maximize outcomes for all people living with PWS, James’ education, management and operating experience spans national and international charities, special school settings and disability services. 

James holds numerous volunteer appointments, including:

  • Council Member, RARE Global Advocacy Leadership Council, Global Genes
  • President, Prader-Willi Syndrome Australia
  • Founding Director, PWS Better Living Foundation

James’ love for his two children, including his son Ashley, living with PWS, drives his desire to establish PWS education, advocacy and support services across Australia and around the globe.

James was an IPWSO Trustee from 2016-2022 as well as holding the role of Vice-President.


Posted on

23 October 2020