Maria Libura

Adviser

Maria has been, for the past 15 years, the president of the Polish Prader-Willi Association.  During this time, the association successfully cooperated with the Polish Ministry of Health and the Polish Society for Paediatric Endocrinology to establish the National PWS Treatment Programme, which was subsequently extended to adult care. She has a first-hand experience with living with PWS, being a mother of two girls, one of whom is diagnosed with this syndrome. She is the Head of Medical Training and Simulation Center at Medical College of  University of Warmia and Mazury in Olsztyn, engaged in teaching clinical communication. She is also a vice-president of the Polish Society for Medical Communication, a founding member of Polish Personalized Medicine Coalition, as well as an expert of the Jagiellonian Club Analytical Center in the field of health and social care.

Maria was an IPWSO Trustee from 2019-2022.

Skills

Posted on

23 October 2020