by Nicki Francomb | Oct 23, 2020
CSAB Member Marilyn has a faculty practice with patients with have childhood obesity, PWS, sleep disorders or learning disabilities. A founding member of Academic Pediatric Association’s Continuity Clinic Research Network, the HRSA-funded Genetics Initiative in...
by Nicki Francomb | Oct 23, 2020
Chief Executive Officer Marguerite is based in Ireland and has a doctorate in Social Science from University College Cork. Marguerite has held senior voluntary and paid positions in non-profit organisations in sectors including international development, patient...
by Nicki Francomb | Oct 23, 2020
Adviser Maria has been, for the past 15 years, the president of the Polish Prader-Willi Association. During this time, the association successfully cooperated with the Polish Ministry of Health and the Polish Society for Paediatric Endocrinology to establish the...
by Nicki Francomb | Oct 23, 2020
Adviser Marcello lives in Atlanta with his wife Andrea and his 2 daughters: Giulia, born in 2003 and diagnosed with PWS shortly after birth; and Nina, born in 2008. Marcello has more than 30 years of experience in senior executive finance roles in leading...
by Nicki Francomb | Oct 23, 2020
Developmental and Behavioral PediatricianPittsburgh Partnership: Specialists for Prader-Willi Syndrome