by Shelly Cordner | May 15, 2025 | News
James (Jim) Gardner November 18, 1940 — April 26, 2025 A Champion of the Prader-Willi syndrome community We in IPWSO were sad to hear of the recent passing of Jim Gardner from Minnesota, USA, a much-valued and longstanding member of the IPWSO community, and husband...
by Shelly Cordner | Mar 31, 2025 | News
First treatment for hyperphagia in Prader-Willi syndrome brings hope to individuals with PWS and their families around the world. The United States Food and Drug Administration (US FDA) has approved VYKAT™ XR, a significant milestone as the first approved treatment...
by Nora McNairney | Jan 6, 2025 | News
We are delighted to welcome Margaret Walker as she joins us today as our new CEO. Margaret is a committed association management and public affairs professional with over 20 years’ experience in the field. She has worked with scientific, medical, family and patient...
by Nora McNairney | Oct 17, 2024 | News
Announcing a new round of funding for PWS Conference and Workshops for 2025! Thanks to the support of Friends of IPWSO (USA), the IPWSO Grants Committee is able to offer funding to individuals and groups who are interested in planning and hosting a PWS event to...
by Nora McNairney | Oct 17, 2024 | News
Since its first Conference in 1991, IPWSO Conferences have been held in 11 countries on 5 continents. Whatever the size of your country or PWS Association, if you would like to host the 2028 IPWSO Conference, we would love to hear from you. You can find out more about...
by Nora McNairney | Oct 17, 2024 | News
We have launched a new round of funding for families and professionals to organise PWS projects in countries where they are needed most. IPWSO is offering microgrants for small projects to support the efforts of individuals and groups who are working to improve the...
