Lesley Robertson

I have been fortunate to be able to advocate for PWS, supported by my husband Don and our family. I have been able to attend Conferences and keep up to date. I have been accepted by Doctors and Caregivers as an equal with lived knowledge of the syndrome. It is a lifelong commitment, with many difficulties and problems along the way, but as our other two children would say “what doesn’t break you makes you”. Our son David is a loved member of our extended family and is accepted by them as an equal.