by Nicki Francomb | Aug 25, 2020 | Blog
We love to hear your stories from around the world. In this blog post Ansh and his mum Shikha tell us about how Ansh made big changes in his life and how he hopes to inspire other people with PWS to lead healthy lives. Ansh is a young man growing up with PWS in India,...
by Nicki Francomb | Aug 24, 2020 | Blog
Without support and good management of diet and nutritional behaviours, PWS will lead to morbid obesity. This is due to the combination of the overriding desire to eat, coupled with low muscle tone. In order to manage the person with PWS’s weight, it is important to...
by Nicki Francomb | Aug 24, 2020 | Blog
This is one of the most common questions asked particularly by new parents and family members of a new-born baby or child with PWS. The syndrome is rare and in many parts of the world there is limited access to support and information. Most people, including many...
