by Nicki Francomb | Nov 17, 2020
Parent of an adult daughter with PWS and founder of the Argentinian PWS Association. Ellie was also a past Vice President of IPWSO and has been a long time advocate for families in Latin America where there is a child with PWS.
by Nicki Francomb | Nov 17, 2020
Formerly an English teacher at a university but now working as a medical translator Tomoko works closely with PWSA Japan to translate or talk in public to distribute necessary information. Her daughter with PWS passed away (infant death), but Tomoko is still an active...
by Nicki Francomb | Nov 17, 2020
Parent, Medical Health Adviser with over 25 years experience of PWS Janalee has been CEO of the USA PWSA, Vice Chairperson of IPWSO and Medical Adviser.
by Nicki Francomb | Nov 17, 2020
Legal Adviser to IPWSO for 20 years and parent of a daughter with PWS.