Our Famcare Board has written a fantastic collection of guides to help families navigate the key issues affecting people with PWS.
A guide to rituals and obsessions
A guide to the transitional years
After the Diagnosis, Relief and Acceptance
Basics of a healthy adult lifestyle
Importance of planned, purposeful days
Preparing for the future: When parents die
Supporting people with PWS during COVID-19
When a person with Prader-Willi syndrome is in trouble with the law
You can find the current membership of the Famcare Board here.