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We wish to share that Margaret Walker, our current CEO, will be stepping down from her role as Chief Executive Officer at IPWSO. The Trustees would like to thank Margaret for her contribution over the past year and express their sincere gratitude for the commitment, leadership, and energy she has brought to the organisation during her time in post. Thank you Margaret!

Following this news, we are now seeking an experienced and inspiring Chief Executive Officer to lead the organisation into its next phase of development. 

This appointment offers an exciting opportunity for a values-driven leader to build on strong foundations, work closely with an engaged Board, and support IPWSO’s global mission on behalf of people living with Prader-Willi syndrome and their families worldwide.

The closing date is 19 February, 2026 at 5 pm (UK time). Interviews will be held on a rolling basis.  For further information see the application pack and advertisement below.

 https://ipwso.org/wp-content/uploads/2026/01/IPWSO-CEO-Application-Pack-updated-Jan-2026-final.pdf

https://www.charityjob.co.uk/jobs/ipwso/chief-executive-officer/1051843?tsId=36

If you have any queries, please contact Nora McNairney – nmcnainey@ipwso.org.