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Karin Clarke

Karin Clarke

by | Jul 13, 2022

Co-opted Trustee Karin Clarke is the Chairperson of the Prader-Willi Syndrome Support Group of South Africa.  She graduated with a Bachelor’s degree in economics and psychology from the University of Cape Town (UCT).  She worked in Marketing Research, at Kantar TNS...
Nathalie Kayadjanian

Nathalie Kayadjanian

by | Jul 13, 2022

Co-opted Trustee Nathalie Kayadjanian, Ph.D is an expert in translational biomedical research for rare diseases with extensive experience in academia, biotech, and the pharmaceutical industry in Europe and in the USA. For the past several years, Nathalie has occupied...
Li-Ping Tsai

Li-Ping Tsai

by | Aug 30, 2022

Member, Clinical and Scientific Advisory Board Head, Department of Pediatrics, Taipei Tzu Chi Hospital, Taiwan.
Jorgelina Stegmann

Jorgelina Stegmann

by | Sep 20, 2022

Member, Clinical and Scientific Advisory Board Jorgelina Stegmann, MD, MBA, is President of the Fundacion SPINE, a centre for specialist treatment and research into Rare Diseases, specifically in PWS, in Argentina and she is Co-Founder of RDCom (Rare Diseases...
Yvonne Rochford

Yvonne Rochford

by | Nov 4, 2022

Member, Famcare Board Yvonne is based in Ireland. She has an honours degree in Management and Business Studies, from Queen’s University Belfast. Yvonne has worked in Operations, on a National level for almost 10 years. Her most recent role has provided consultancy to...