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About Us

We are an international non-profit membership organisation supporting national Prader-Willi syndrome associations, as well as people with PWS, their families and the professionals who work with them.

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A Message to our PWS community about email security: We are careful to protect our members’ email addresses. However, unfortunately, all organisations are at risk of email scams, in which individuals purporting to come from IPWSO or a Trustee, reach out pretending to be someone you trust to get sensitive information such as bank details or personal data. Please be careful. Do not click on any links within the email. Check the email address of the sender. Safe emails from IPWSO staff will come from the domain Home – IPWSO ipwso.org and if you are unsure about an email, please check it with us at office@ipwso.org. Thank you.

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