A Personal Reflection
by Salman Shaban, Qatar
When my daughter, Soha Shaban, was diagnosed with Prader–Willi Syndrome in 2011 soon after her birth, my world shifted in ways I never expected. What began as a journey filled with uncertainty gradually transformed into one of resilience, patience, and profound gratitude. Soha’s presence has been my greatest teacher, showing me that strength often appears in the smallest victories and quietest moments.
As the years passed, I realized that the lessons I learned within my own home could serve a much larger purpose. I wanted to give back, not only for Soha, but for every family navigating a similar path. That desire led me to join the advisory board at her school and later at her hospital, two communities that play an essential role in her life.
Stepping into these roles opened doors to meaningful change. I found myself raising awareness about Prader–Willi Syndrome and similar conditions, advocating for better accommodations, and helping shape environments where children like Soha are understood, supported, and empowered. Whether discussing individualized education plans, classroom settings or improving hospital procedures, every conversation felt like a step forward for the wider community.
Through this work, I discovered that advocacy is not about grand gestures, it’s about consistent, heartfelt effort. It’s about turning personal experience into collective progress. And most importantly, it’s about ensuring that children like Soha are not only cared for but truly seen.
My hope is that by sharing our story, others will feel encouraged to use their own experiences to uplift the world around them.
(Pictured above) Soha and Salman
Soha on the day of her graduation ceremony at the Pearling Season International School of Doha, Qatar. She proudly completed both the ASDAN Bronze and Silver programs.
Sabika, Soha and Salman Shaban