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Preliminary Programme

6th International Prader-Willi Syndrome Caregivers’ Conference

Please note: The Conference Organisers reserve the right to amend the content and timings of the programme as deemed necessary.

List of speakers and final programme to be announced from March, 2024, following the Abstract selection process.

Day 1 | Tuesday 21 May

10:00 – 10:15 Opening and welcome

10:15 – 10:30 Thank you caregivers! Video of thanks from people receiving PWS care around the world.

10:30 – 11:00 Pam Eisen Lecture: The future of care for people with PWS

11:00 – 11:30 Lecture: What we want from caregivers

11:30 – 12:00 Questions and Answers: Your medical questions (Part 1)

12:00 – 13:30 Lunch Break

13:30 – 13:45 Introduction to the workshops

13:45 – 15: 30 1st workshops begin. Choose between: 1. Therapy options: Art and ABA 2. Balancing rights and restrictions for individuals with PWS 3. Friends, partnerships and sexuality 4. Understanding behaviour

15:30 – 15:45 Break

15:45 – 17:30 1st workshops continue

17:30 End of day

Day 2 | Wednesday 22 May

09:00 – 10:30 First workshops continue. Concluding session.

10:30 – 10:45 Break

10:45 – 11:45 Lectures: Clinical and scientific overview on PWS research

11:45 – 12:15 Questions and Answers: Your medical questions (Part 2)

12:15 – 13:30 Lunch Break

13:30 – 14:15 Roundtable discussion: Self-determination, self-control, Opportunities and limitations

14:15 – 15:45 Second workshops begin. Choose between: 1. Aging 2. Staff retention: and what happens when there’s a breakdown? 3. Friends, partnerships and sexuality (repeated) 4. Understanding behaviour (repeated)

15:45 – 16:00 Break

16:00 – 17:30 Second workshops continue

17:30 – 19:00 Break

19:00 – 23:00 Conference Dinner

Day 3 | Thursday 23 May

09:00 – 10:45 Second workshops continue. Concluding session.

10:45 – 11:00 Break

11:00 – 11:30 Lecture: Meaningful Employment for people with PWS

11:30 – 11:45 Presentation: Network Switzerland

11:45 – 12:00 Presentation: PWS Competence Center Austria

12:00 – 13:30 Lunch Break

13:30 – 14:45 Presentations: Feedback from all workshops

14:45 – 15:00 Break

15:00 – 15:45 Roundtable discussion: What supports are available for people with PWS who overburden the system with their challenging behaviour? 

15:45 – 16:15 Close and thank you

16:15 End of conference

Scholarships

Depending on availability of funds, IPWSO offers scholarships to attend our conferences. Contact us to keep up to date with conferences, workshops, meetings, and scholarship grants.

Future conferences

Has your Association thought about hosting an IPWSO conference? In the past these have been held in the Netherlands, Norway, Italy, USA, New Zealand, Romania, Taiwan, UK, Canada, Cuba and most recently Ireland. In 2025 we are delighted to be returning to the USA.

If your association is interested in hosting a future conference do get in touch.

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