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IPWSO Health ECHO® Resources

Presentation Videos

Materials from IPWSO Health ECHO® are available here. 

Dr Tony Goldstone, Clinical Senior Lecturer and Consultant Endocrinologist, Imperial College London, UK
“How We Understand Hyperphagia in PWS”

Presented at the IPWSO Health ECHO on May 18, 2021. In this session we gained an understanding of the nature of hyperphagia and overeating in PWS, the importance of control of the food environment in management of hyperphagia in PWS, and the current situation regarding potential new treatments for hyperphagia in PWS. The PDF of this PowerPoint is available here. To read the Q&A following the session please refer to the abridged abstract summary.


Dr Charlotte Höybye, Senior physician, Associate professor, Karolinska University Hospital, Sweden
“Prader-Willi syndrome: Adolescent and Adult Endocrinology”

Presented at the IPWSO Health ECHO on April 20, 2021. In this session we learned how PWS is associated with documented hormone deficiencies which should be monitored and treated when indicated, and that hormone therapy offers an opportunity to reduce some of the adverse consequences of PWS. Please note some pictures have been removed for privacy. The PDF of this PowerPoint is available here. To read the Q&A following the session please refer to the abridged abstract summary.


Dr Constanze Lämmer, Senior Physician, Children’s Hospital, St. Bernward Hospital, Hildesheim, Germany
“The Care of the Infant with PWS”

Presented at the IPWSO Health ECHO on March 16, 2021. This talk covers the importance of a holistic approach; Nutrition; Physiotherapy; Early intervention; Endocrine aspects; Orthopedic problems; Additional health issues. The PDF of this PowerPoint is available here. To read the Q&A following the session please refer to the abridged abstract summary 


Dr Kate Baker, Cambridge University Hospitals, University of Cambridge
“Prader-Willi syndrome: Genetic diagnosis”

PART 2 of Dr Kate Baker’s presentation, “Prader-Willi syndrome: Clinical presentations and genetic diagnosis” presented at the IPWSO Health ECHO on February 16, 2021. This part of the talk cover areas including different genetic forms of Prader-Willi syndrome; the genetic diagnostic pathway; the particular genetic sub types; the importance of genetics in a firm diagnosis. The PDF of this presentation is available hereTo read the Q&A following the session please refer to the abridged abstract summary 


Dr Kate Baker, Cambridge University Hospitals, University of Cambridge
“Prader-Willi syndrome: Clinical presentations”

PART 1 of Dr Kate Baker’s presentation, “Prader-Willi syndrome: Clinical presentations and genetic diagnosis” presented at the IPWSO Health ECHO on February 16, 2021. This part of the talk covers areas including clinical features of PWS; the evolution of PWS symptoms over time; evidence of endocrine deficiencies; the emergence of more psychiatric and psychological problems. The PDF of this presentation is available here. To read the Q&A following the session please refer to the abridged abstract summary.  


Tony Holland, President, IPWSO
“Introduction to Project ECHO®”

IPWSO President Tony Holland speaks about the objectives of Project ECHO as part of the first IPWSO Health ECHO on February 16, 2021. 


Further materials from the IPWSO Health ECHO® will be made available here.

Copyright and other intellectual property rights in the speakers’ papers and presentations remains the sole property of each speaker and IPWSO has the right to use and broadcast such papers and presentations under licence. Copyright in the recording of the ECHO® session remains the property of IPWSO. No participant or any other person has the right to reproduce the recording, or any paper or presentation, in whole or in part, without the written consent of IPWSO.

The information contained in the multimedia content (video content) posted, represents the views and opinions of the original creators, and whilst IPWSO requests presenters to use content that is evidence-based and peer reviewed, the video content does not necessarily represent the views of IPWSO. The mere appearance of video content on this site does not constitute an endorsement by IPWSO or its affiliates of such content.  The content has been made available for informational and educational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. IPWSO hereby disclaims any and all liability to any party for any direct, indirect, implied, punitive, special, incidental, or other consequential damages arising directly or indirectly from any use of the video content, which is provided as is, and without warranties.

 

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