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  6.  » The IPWSO Caregivers’ ECHO®

The IPWSO Caregivers’ ECHO®

Using Zoom technology, we’ll share experiences and expertise to support quality of life for people living with PWS.

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The goal of the IPWSO Caregivers’ ECHO is to learn together, examine and improve methods, and develop solutions for challenges than can arise when working with people with PWS. Sessions will include short and focused presentations delivered by international experts, as well as learning opportunities based on challenging scenarios presented by participants.

Benefits of joining the IPWSO Caregivers’ ECHO Community

  • Caregivers who understand PWS, and know about what people in their care may experience, are best placed to support people with PWS.
  • Dedicated time and to consider common themes in the every-day support of people with PWS (such as understanding behaviour, communication, supporting fitness, nutrition management) in a supportive community setting.
  • We are the experts in Prader-Willi syndrome worldwide and you can fast track your learning. You will have access to internationally renowned professionals who are keen to share their knowledge and understanding of this rare syndrome and who want to learn from your experiences. The IPWSO Caregivers’ ECHO is an “all teach, all learn” model that ultimately benefits people with PWS.
  • You will be part of a movement helping to decrease disparities and promote consistency in the care and support of people with PWS.

Who can attend the IPWSO Caregivers’ ECHO?

This programme is aimed at Caregivers and Providers who are in contact with people with PWS in an all-day setting.

Further details

    • Starts: May 2021. 
    • Duration: 12-Sessions each lasting 90 minutes
    • Frequency: Monthly

    • Attendance: Free for all participants.
    • Methodology:  All teach–All learn
      Sessions will include both short and focused presentations by medical experts on PWS, as well as the discussion of challenges presented by participants.  Participants will have the opportunity to help shape the content of the sessions to explore the topics of most value to the group.

International Community

IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.

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Information for
Families

Find useful guides, research and information to help families manage PWS.

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Information for Medical Professionals

The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

Information for
Professional Caregivers

Sharing international knowledge among professional service providers throughout the world.

What is PWS?

Translated Guides

Find support in my country