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IPWSO Caregivers’ ECHO® Resources

Presentation Videos

Materials from IPWSO Caregivers’ ECHO® are available here. 

Damien Jones, Interaction Disability Services, Australia
“Prader-Willi Syndrome (PWS) and Restrictive Practice”

Presented at the IPWSO Caregivers’ ECHO on July 21, 2021. In this session we discussed the convention on the rights of persons with disabilities, the right to fully participate and self-determination, negative rights versus positive rights, and informal restrictive practices. We shared examples of restrictive practices that we use and spoke of the need for frameworks around restrictions.

The PDF of this PowerPoint is available here To read the Q&A following the session please refer to the abridged abstract summary.

Larry Genstil, PhD, Psychologist, Israel
“Managing Behavioural Issues of the Child with Prader-Willi Syndrome in School”

Presented at the IPWSO Caregivers’ ECHO on June 23rd, 2021. In this session we gained an understanding of social skills and how children with PWS learn differently than other children, role modelling with behaviour rehearsals for specific situations, and reinforcing positive behaviours.

The PDF of this PowerPoint is available here. To read the Q&A following the session please refer to the abridged abstract summary.

Norbert Hödebeck-Stuntebeck, IPWSO PPCB Chair, Psychologist, Diakonische Stifung Wittekindshof, Germany
“Basic philosophy of taking care of people with PWS”

Presented at the IPWSO Caregivers’ ECHO on May 12th, 2021. In this session we considered the differences of the situations for people with PWS in countries all over the world; the individuality of each person with PWS and as a consequence, the need of individualized support; and developing the competencies of self-control and independence.

The PDF of this PowerPoint is available here. To read the Q&A following the session please refer to the abridged abstract summary.

Further materials from the IPWSO Caregivers’ ECHO® will be made available here.

Copyright and other intellectual property rights in the speakers’ papers and presentations remains the sole property of each speaker and IPWSO has the right to use and broadcast such papers and presentations under licence. Copyright in the recording of the ECHO® session remains the property of IPWSO. No participant or any other person has the right to reproduce the recording, or any paper or presentation, in whole or in part, without the written consent of IPWSO.

The information contained in the multimedia content (video content) posted, represents the views and opinions of the original creators, and whilst IPWSO requests presenters to use content that is evidence-based and peer reviewed, the video content does not necessarily represent the views of IPWSO. The mere appearance of video content on this site does not constitute an endorsement by IPWSO or its affiliates of such content.  The content has been made available for informational and educational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. IPWSO hereby disclaims any and all liability to any party for any direct, indirect, implied, punitive, special, incidental, or other consequential damages arising directly or indirectly from any use of the video content, which is provided as is, and without warranties.


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