IPWSO Caregivers’ ECHO® Resources
Materials from IPWSO Caregivers’ ECHO® are available here.
Damien Jones, Interaction Disability Services, Australia
“Prader-Willi Syndrome (PWS) and Restrictive Practice”
Presented at the IPWSO Caregivers’ ECHO on July 21, 2021. In this session we discussed the convention on the rights of persons with disabilities, the right to fully participate and self-determination, negative rights versus positive rights, and informal restrictive practices. We shared examples of restrictive practices that we use and spoke of the need for frameworks around restrictions.
Larry Genstil, PhD, Psychologist, Israel
“Managing Behavioural Issues of the Child with Prader-Willi Syndrome in School”
Presented at the IPWSO Caregivers’ ECHO on June 23rd, 2021. In this session we gained an understanding of social skills and how children with PWS learn differently than other children, role modelling with behaviour rehearsals for specific situations, and reinforcing positive behaviours.
Norbert Hödebeck-Stuntebeck, IPWSO PPCB Chair, Psychologist, Diakonische Stifung Wittekindshof, Germany
“Basic philosophy of taking care of people with PWS”
Presented at the IPWSO Caregivers’ ECHO on May 12th, 2021. In this session we considered the differences of the situations for people with PWS in countries all over the world; the individuality of each person with PWS and as a consequence, the need of individualized support; and developing the competencies of self-control and independence.
Further materials from the IPWSO Caregivers’ ECHO® will be made available here.
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