Translated Guides
IPWSO has had many articles translated. Most of these relate to family care of a person with PWS and some are medical articles. We are continuing to add to these. You are welcome to download and distribute these articles, but please quote IPWSO as the source. These translations have been checked by native speakers and we have tried to make them as exact as possible, but if you notice any errors please let us know.
Elsewhere on the website we are reliant on Google translate which automatically translates web text. We know that this does not provide a perfect translation but we hope that it is of a good standard and will improve over time. If there are factsheets that you would like translated formally then please let us know.
Arabic / عربى
- Videos
- IPWSO leaflet
- People with Prader-Willi syndrome can avoid obesity
For doctors:
- Does your patient have Prader-Willi syndrome?
- Free diagnosis: information for professionals
- Important medical facts about Prader-Willi syndrome
- Guides for Doctors: Infants (age 0-3) with Prader-Willi syndrome
- Guides for Doctors: Children (age 3-12) with Prader-Willi syndrome
- Guides for Doctors: Adolescents with Prader-Willi syndrome
- Guides for Doctors: Adults with Prader-Willi syndrome
- Medical Alerts
For families:
- Promoting Positive Behaviour
- Diet and Nutrition
- The importance of planned, purposeful days
- Exercise for people with Prader-Willi syndrome
- Guide to Duty of Care
- Guide to Coping with Change
- Guide to Managing Skin picking
- Guide to PWS Awareness for Professionals
- Basics of an Adult Healthy Life
- Free diagnosis: information for families
Croatian / Hrvatski
• Medical Alerts / Medicinska upozorenja
Dutch / Nederlands
- Health Checklist / Gezondheidschecklist
- Guide to Confabulation / Verzinsels
- Guide to Coping with Change / Omgaan met veranderingen bij mensen met het Prader Willi Syndrome
- Guide to “I want the same” / Ik wil hetzelfde
- Guide to Setting Boundaries / Zekerheid door het stellen van grenzen
- Basics of an Adult Healthy Life / De basis voor een gezonde volwassen levensstijl
- Medical Alerts Handbook / Aandachtspunten
French / Français
- IPWSO brochure
- People with Prader-Willi syndrome can avoid obesity / Les personnes avec un syndrome de Prader-Willi peuvent éviter l’obésité
- Does your patient have Prader-Willi syndrome? / Votre patient a t’il un syndrome de Prader-Willi?
- Important medical facts about Prader-Willi syndrome / Faits médicaux importants sur le syndrome de Prader-Willi
- Prader-Willi syndrome and the Young Child / Le syndrome de Prader-Willi et le jeune enfant (Février 2021)
- Sex hormones, fertility and sexuality in Prader-Willi syndrome / Syndrome de Prader-Willi , hormones sexuelles, fertilité et sexualité (Mars 2021)
Georgian
German / Deutsche
- Health Checklist / Checkliste für eine “Gute Gesundheit”
- Basics of a Healthy Adult Lifestyle / Die Grundlagen für einen gesunden Lebensstil im Erwachsenenalter
- Guide to Confabulation / Geschichten erzählen
- Guide to Coping with Change / “Umgang mit Veränderungen” bei Menschen mit Prader-Willi-Syndrom
- Guide to Skin picking / Hautverletzung (Skin-Picking) bei Menschen mit PWS
- Guide to setting boundaries / Sicherheit durch Grenzen
- Guide to Behaviour Management / PWS Verhaltensstrategien
- Fertility, Sexuality and Sex hormones in PWS / Fertilität, Sexualität und Geschlechtshormone bei Erwachsenen mit PWS
- Guide to Managing a Meltdown / Der Umgang mit „Krisen” bei Menschen mit Prader-Willi-Syndrom
- Guidance on supporting people with PWS during Covid-19 / Unterstützung von Menschen mit dem Prader-Willi-Syndrom während der Corona-Pandemie
- People with PWS and COVID-19 immunisation December 2020 / Stellungnahme des Clinical and Scientific Advisory Board (CSAB) der IPWSO zu Menschen mit PWS und COVID-19 Immunisierung
Greek / Ελληνικά
Hungarian / Magyar
Italian / Italiano
- Important medical facts about Prader-Willi syndrome / Importanti informazioni mediche sulla Sindrome di Prader-Willi
- Medical Alerts Handbook / Avvertenze Mediche
- Health Checklist / Elenco della “Buona salute”
- Guide to Basics of a Healthy Adult Lifestyle / Le Basi per una Vita adulta Sana
- Guide to Confabulation / Racconti inventati nella PWS
- Guide to Coping with Change / “Gestire il cambiamento” nelle persone con sindrome di Prader Willi
- Guide to I want the same / Voglio lo stesso
- Guide to Managing a Meltdown / “Gestire una crisi di nervi ” in persone con sindrome di Prader-Willi
- Guide to Managing Skin picking / Lo Skin picking (Dermatillomania)
Japanese / 日本語
- Medical Alert / メディカルアラート 日本語版
- Exercise for people with PWS / PWSを持つ人にとっての運動
- Promoting positive behaviour / 一定のルールを一貫して導入することの有用性
- Transition in people with PWS / 移行期
- Meeting with professionals / 専門家との面談に関するのガイダンス
- プラダー・ウィリー症候群と診断されたお子さんのご両親のために書かれたものです。
- Guide to health: checklist / 「健康」チェックリスト
- Guide to Basics of a Healthy Adult Life / PWS を持つ成人の健康的な生活に欠かせないポイントについて
- Guide to confabulation (story telling in PWS) / PWS を持つ人の作話
- Guide to coping with change in PWS / PWS を持つ人の「変更への対応」
- Guide to “I want the same” / PWS を持つ人に、「どうしてわたしは他の人と同じものをもらっては（同じことをして は）いけないの？」と聞かれたら、あなたはどう答えますか？
Latvian / Latvietis
Mandarin / 汉语
- Videos
- 关于PWS的重要医学事实 One page PWS medical facts
- 0-3岁PWS患儿的医疗护理 Guides for Doctors: Infants (age 0-3) with Prader-Willi syndrome
- 3-12岁PWS患儿的医疗护理 Guides for Doctors: Children (age 3-12) with Prader-Willi syndrome
- PWS青少年患者的医疗护理 Guides for Doctors: Adolescents with Prader-Willi syndrome
- PWS成人患者的医疗护理 Guides for Doctors: Adults with Prader-Willi syndrome
- Medical Alerts
- 饮食和营养 Diet and Nutrition
- 有计划、有目的的饮食至关重要 The importance of planned, purposeful days
- 普拉德-威利综合征患者的锻炼 Exercise for people with Prader-Willi syndrome
- Basics of a healthy adult life
- Guide to PWS and duty of care
- Coping with change
- Meeting with Professionals
- Skin picking
Persian / زبان فارسي
Portugese / Português
- Does your patient have Prader-Willi syndrome? / O seu paciente tem síndrome de Prader-Willi?
- Medical Overview 0-3 years / Cuidados médicos para lactantes e crianças pequenas (0-3 anos)
- Medical Overview 3-12 years / Cuidados médicos para a criança (idade 3-12 anos) com síndrome de Prader‐Willi
- Medical Alerts Handbook / Síndrome de Prader-Willi Alertas Clínicos (Brazilian Portuguese)
- Medical Alerts Handbook / Síndrome de Prader-Willi Alertas Clínicos
- Guide to Managing a Meltdown / “Gerenciando um colapso” em pessoas com síndrome de Prader‐Willi
- Guide to Duty of Care / Guia para: Síndrome de Prader-Willi e o Dever de cuidar
- Guide to Exercise / Exercício para Pessoas com Síndrome de Prader-Willi
- Guide to Motivation / Motivar alguém com SPW
- Blind Rage / Raiva cega
- Skin picking / Dermatotilexomania em pessoas com síndrome de Prader‐Willi
- Hormônio do Crescimento e Síndrome de Prader-Willi (2024) PWSA | USA translation – Translated by PWS Brasil
Romanian / Română
Russian / русский
- Basics of a Healthy Adult Life / Основные правила для здорового образа жизни у взрослых
- Health Checklist / Список для контроля здоровья
- Coping with Change / Советы, как помочь людям с синдромом Прадера–Вилли справиться с переменами
- Rethinking our Approach / Пересмотр подхода к диете и питанию людей с синдромом Прадера-Вилли
- Guide to PWS & Duty of Care / Руководство по синдрому Прадера-Вилли и обязанностям по уходу
- Guide to Skin picking / Дерматилломания у людей с синдромом Прадера–Вилли
- Guide to Weight Management / УПРАВЛЕНИЕ ВЕСОМ И ПОВЕДЕНИЕМ: что можно делать, и чего нельзя
Slovenian / Slovenščina
Spanish / Español
Cuidados médicos
- Medical overview & evaluation for babies and infants / Cuidados médicos para bebés y niños pequeños con síndrome de Prader-Willi
- Medical Overview & Evaluation 3-12 years / Cuidados médico para niños (edad 3-12 años) pequeños con síndrome de Prader-Willi
- Medical Overview & Evaluation – Adolescent / Cuidados médico para el adolescente con síndrome de Prader-Willi
- Medical Overview & Evaluation – Adult / Cuidados médico para adultos con síndrome de Prader-Willi
- Medical Alert Handbook / Alerta Médica síndrome de Prader-Willi
- Medication warning / Advertencia- ¡La combinación de medicamentos pueden afectar de forma fatídica la capacidad respiratoria en PWS! PWSA (USA)
El diagnóstico de SPW
- Free diagnosis, information for families / Iniciativa Internacional para el diagnóstico de SPW: Información para las familias
- Free diagnosis, information for professionals / Iniciativa Internacional para el Diagnóstico de Síndrome de Prader-Willi: Información para profesionales
- Getting tested, PWSA (USA) / Realizarse las pruebas para el Síndrome de Prader-Willi, PWSA (USA)
Comida
- Follow the Principles of Food Security, PWSA (USA) / Siga los Principios de la Seguridad Alimentaria, PWSA (USA)
- When Food is Deadly, PWSA (USA) / Cuando el Alimento es Mortal, PWSA (USA)
Comportamiento
- Motivating a person with PWS / Motivando a Alguien con SPW
- Managing change with a person with PWS / “Afrontando los cambios” en personas con Síndrome de Prader Willi
- Confabulation (Storytelling) / “Narración de historias” Síndrome Prader-Willi
- Promoting positive behaviour / Estrategias para Obtener una Conducta Positiva, PWSA (USA)
- Guide to “I want the same” / Yo quiero lo mismo
- Guide to Managing a Meltdown / “Manejando una rabieta” en personas con síndrome de Prader-Willi
- What is Blind Rage? / Furia Ciega
Apoyo familiar
- Guide to PWS & Duty of Care / Guía de: Síndrome de Prader-Willi y Responsabilidad del Cuidado
- Impact of PWS / Impacto del Síndrome, PWSA (USA)
- How does a Person with PWS Think? PWSA (USA) / ¿Cómo Piensa Una Persona Con El Síndrome Prader-Willi? PWSA (USA)
- Process of Teaching and Learning, AESPW / El proceso de enseñanza-aprendizaje en personas con SPW, AESPW
- PWS in the classroom / El Síndrome de Prader-Willi en las aulas, buenas prácticas, AESPW
Salud
Swedish / Svenska
Turkish / Türk
- Important Medical Facts about PWS, Prader-Willi Sendromu (PWS) Hakkında Önemli Tıbbi Bilgiler
- Ovewview and Evaluation for babies 0-3 years / 0-3 Yaş Arası Prader-Willi Sendromlu Bebekler
- Overview and Evaluation for Children with PWS Aged 3-12yrs, 3-12 Yaş Arası Prader-Willi Sendromlu Çocuklar
- Overview and Evaluation for Adolescents with PWS, Prader-Willi Sendromlu Ergenler
- Overview and Evaluation for Adults with PWS, Prader-Willi sendromlu yetişkinler
- Medical Alerts Handbook / Tıbbi Uyarılar
- Diet and Nutrition / Diyet ve Beslenme
- The importance of planned, purposeful days, Planlı, amaçlı günlerin önemi
- Exercise for people with Prader-Willi syndrome, Prader-Willi sendromlu kisiler icin egzersiz
Vietnamese / Tiếng Việt
Please also visit our friends at Asociación Española Síndrome de Prader Willi for many helpful guides.
International Community
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for
Families
Find useful guides, research and information to help families manage PWS.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
Information for
Professional Caregivers
Sharing international knowledge among professional service providers throughout the world.