IPWSO Project ECHO® Programme
Project ECHO® is a key enabler to IPWSO’s strategy to grow and strengthen the PWS community. Through online learning and knowledge sharing we work to reduce global inequality in the availability of treatments, services and information for people with PWS and their families.
IPWSO’s mission is to unite the Prader-Willi syndrome (PWS) community globally. We want to build a knowledge network and to reach underserved populations so that everyone, everywhere, knows about the best social care and medical treatments available to people with PWS.
Collectively, we believe, we can find solutions to the challenges of the syndrome and together we can help to share best practice and build centres of excellence in PWS across the world.
In collaboration with the University of New Mexico’s Project ECHO® initiative, we are pleased to offer free online tele-mentoring programmes designed to support health and allied professionals, parents, caregivers, families, PWS Associations and people who wish to form groups to raise awareness and advocate for the needs of people with PWS.
Our previous educational programmes included a Leadership, a Health, an SWP Latino Américan and a Caregivers* ECHO. Each was aimed at a different group of participants. Video presentations from all ECHO sessions are linked on the right.
Our most recent ECHO® programme was the IPWSO Mental Health ECHO® 2023, which concluded in September. As further programmes are determined they will be announced here.
*With the exception of the Caregivers’ ECHO, these programmes have received support under a medical education grant from Pfizer Inc. For further information see our Acknowledgements section below.
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Acknowledgements
IPWSO is grateful to Pfizer Inc., for supporting the ECHO® programmes by way of an Independent Medical Education Grant.
IPWSO is solely responsible for the content of the programmes and the selection of presenters, authors and moderators and/or faculty (“Faculty”). Pfizer Inc., does not direct or influence the content of the programmes and does not participate in the selection of the “Faculty”.
Presenters are required to complete a Meaningful Disclosure of Supports at the outset of presentations.
IPWSO acknowledges that the International Academy of CPD Accreditation Consensus Statement (https://academy4cpd-accreditation.org) is a benchmark for independence in continuing medical education (CME) funding and will adhere to the IACPDA Consensus Statement with respect to the ECHO® programmes and the funding even if the programmes are not accredited or certified CME Programmes.
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International Community
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for
Families
Find useful guides, research and information to help families manage PWS.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
Information for
Professional Caregivers
Sharing international knowledge among professional service providers throughout the world.
What is PWS?
Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome and it affects all races and both sexes equally.
Free Diagnosis
If you suspect your patient has Prader-Willi syndrome, based on the clinical signs and symptoms, but are unable to access testing in your country, then you may be able to access free testing.
Find support in my country
We have contacts in many countries and regions around the world.