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Results for "Get PL-100 Exam Questions To Gain Brilliant Results ✳ Search on “ www.pdfvce.com ” for “ PL-100 ” to obtain exam materials for free download 🥜New PL-100 Test Papers"

Maria Libura

Oct 23, 2020

Adviser Maria has been, for the past 15 years, the president of the Polish Prader-Willi Association. During this time, the association successfully cooperated with the Polish Ministry of Health and the Polish Society for Paediatric Endocrinology to establish the National PWS Treatment Programme, which was subsequently extended to adult care. She has a first-hand experience with living with PWS, being a mother of two girls, one of whom is diagnosed with this syndrome. She is…

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New PWS resources available thanks to Global Genes

Oct 13, 2022

…page for all the translated guides. New translations in Arabic: Important medical facts about Prader-Willi syndrome Guides for Doctors: Infants (age 0-3) with Prader-Willi syndrome Guides for Doctors: Children (age 3-12) with Prader-Willi syndrome Guides for Doctors: Adolescents with Prader-Willi syndrome Guides for Doctors: Adults with Prader-Willi syndrome Promoting Positive Behaviour Diet and Nutrition The importance of planned, purposeful days Exercise for people with Prader-Willi syndrome New translations in Mandarin: 饮食和营养 Diet and Nutrition 有计划、有目的的饮食至关重要…

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Shelly Cordner

Jan 25, 2021

Project Manager Shelly has held roles in the UK charity sector encompassing relationship management, fundraising, project delivery and online and in-person events and training management. In health charities she has worked to support people with Parkinson’s and people with Arthritis.  Shelly joined IPWSO at the start of 2021 and is responsible for managing IPWSO Project ECHO® programs as well as other online and in-person workshops, meetings and conferences.  …

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Verena Gutmann

Oct 23, 2020

Chair, Famcare Board Educational Head of Department responsible for the Educational Management of 100 youngsters from 14-20 years. Also responsible for the formation of the Austrian PWS Association and chairperson for 10 years. Verena was an auditor for IPWSO before joining the board. She has a daughter with PWS living in the Regens Wagner Institution in Absberg /Bavaria/Germany. Verena was an IPWSO Trustee from 2016-2022….

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Information for Families

Sep 15, 2020

…support you all the way. ​We have information, practical how-to guides and downloadable resources to help support and enable you to prepare for dealing with and living with PWS throughout the critical stages of development. Take a closer look by clicking on the topics below. If you require any additional advice please contact us. New Parents What to expect, achieving milestones and how to help your child to develop. Siblings Support and advice for living…

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IPWSO calls for use of Growth Hormone treatment in adults

Feb 15, 2021

…in general. The fact that Growth Hormone treatment is now approved for adults with PWS in a few countries is therefore an important milestone. In the letter the researchers draw attention to the uneven global use of Growth Hormone treatment, specifically in adults with PWS, and advocate for Growth Hormone treatment to be approved internationally, not just for children, but also for adults with PWS and based only on the diagnosis of genetically confirmed PWS….

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Neil Gumley

Oct 23, 2020

Service Manager PWS specific facility in Melbourne Australia Neil gained a Science/Disability Degree from RMIT University in Melbourne Australia in 2010 while at the same time working at the Department of Health and Human Services specialising in the management of Complex Behavioural Accommodation facilities. In 2014 Neil moved into the Operation Managers role where he was tasked with the Establishment of the First PWS specific accommodation in Melbourne Australia. The facility has now been running successfully…

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Congratulations to Georgina Loughnan: a champion for people with PWS

Jun 9, 2020

Many of you will know Georgina Loughnan – she has been involved with IPWSO for many years both on the Board and as part of Famcare. It has just been announced that she has been awarded the Order of Australia Medal (OAM) in the Queen’s Birthday Honours for her work with people with PWS. Many many congratulations – for anyone who knows her it goes without saying that this honour is so very well deserved….

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Louis explains how life has changed recently in Ireland

Mar 21, 2020

…an Italian restaurant! I was also able to buy (online!) the full thirteen book set of David Handler’s Lemony Snicket series. I hope they arrive soon. I can’t go to visit my granny anymore, but I can talk to her on the telephone! It sounds very likely that the schools will be closed for longer than two weeks. I don’t really mind even though I miss spending time with my friends in school. by Louis…

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Quick links

three adults and a child smiling

Information for
Families

Find useful guides, research and information to help families manage PWS.

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One man one lady at conference

Information for Medical Professionals

The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.

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young child in a yellow dinosaur jumper

What is PWS?

Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome. 

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