Caregivers’ Forum
A place for professional PWS caregivers worldwide to share practice-driven knowledge, information and support.
Introductory meeting: Thursday, 26 September 2024,
2pm London, UK time
Meetings are held online on Zoom and last for 90 minutes. We recommend using a service such as timeanddate.com to check the time in your region.
The Caregivers’ Forum is a virtual space for professional PWS caregivers worldwide to connect and collaborate. Anyone working in a professional role as a provider of care for people with PWS is welcome to be a part of the Forum. The Forum is supported by the Professional Providers and Caregivers Board (PPCB) of IPWSO, which is an advisory board dedicated to sharing best practice, information, knowledge and techniques to those providing care to the global PWS community, in order that those living with PWS may live their lives to the highest quality.
IPWSO supports this caregiver community by facilitating:
- 3 Caregivers’ Forum meetings annually
- 3 Forum newsletters following meetings
- A webpage for the Forum which includes latest news and shared resources
- Ad-hoc support for networking in your own country
Topics covered will be suggested by Forum members and are likely to include important information on themes such as Ageing, Challenging Behaviour, Day to Day Care, Medical Care, Relationships and Sexuality, Research, Rights and Restrictions, Social Skills and much more.
Join the Forum!
Fill in the short form below to become a Forum Member today. Forum Members receive information on how to join upcoming meetings and 3 annual Forum newsletters. You can help us spread the word by downloading and sharing our information booklet with colleagues.
Scholarships
Depending on availability of funds, IPWSO offers scholarships to attend our conferences. Contact us to keep up to date with conferences, workshops, meetings, and scholarship grants.
Future conferences
Has your Association thought about hosting an IPWSO conference? In the past these have been held in the Netherlands, Norway, Italy, USA, New Zealand, Romania, Taiwan, UK, Canada, Cuba and most recently Ireland. In 2025 we are delighted to be returning to the USA.
If your association is interested in hosting a future conference do get in touch.
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International Community
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for
Families
Find useful guides, research and information to help families manage PWS.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
Information for
Professional Caregivers
Sharing international knowledge among professional service providers throughout the world.