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…information, plus guides into common medical issues affecting people with PWS. Information for Professional Caregivers Sharing international knowledge among professional service providers throughout the world.

…B.Sc., M.B.B.S., M.R.C.P., M.Phil., F.R.C.Psych., Emeritus Professor of the Psychiatry of Intellectual Disabilities, University of Cambridge. Prader-Willi syndrome (PWS) is a complex genetic condition involving a range of physical, mental health and behavioral characteristics. This fact sheet has been prepared for people with PWS, families of people with PWS and for others who provide clinical, behavioral, and educational support. In the fact sheet the risks for specific mental illnesses, referred to as ‘affective disorders’ (depression,…

Research We conduct research and also support and commission others to take part in research to benefit people with Prader-Willi syndrome.   Research on specialist services for people with PWS There is significant anecdotal evidence that PWS-specific residential services bring benefit and are necessary for many people with PWS if they are to have satisfied, socially integrated and healthy lives. However, there are very few peer-reviewed evaluations of these services. Without formal empirical evidence of…

…in Learning (Intellectual) Disability establishing the Cambridge Intellectual and Developmental Disabilities Research Group (www.CIDDRG.org.uk). His specific research interests include the eating, behavioural and mental health problems associated with having Prader-Willi syndrome (PWS). With colleagues he has published research extensively on these topics in academic and practice-based journals. He is Patron of the UK PWS Association and since 2016 he has been President of IPWSO. Since October 2015 he has held an Emeritus position at the…

…decide on legal advice to plead guilty, and the court will proceed to sentencing. If he/she decides to plead not guilty, then the court hearing will commence. There will be differences between countries, but in general, it is for the court to determine beyond reasonable doubt two factors: first that the alleged offence (hitting someone, stealing food) happened (referred to in some jurisdictions as actus reus), and secondly, that it wasn’t simply an accident but…

…Pediatric Endocrinolgy, Winthrop University Hospital, Mineola, NY USA. Susanne Blichfeldt Consultant (Neuropediatrics). Susanne has an adult son with PWS. She is also a member of the IPWSO Famcare Board. Suzanne Cassidy Medical genetics doctor in Sausalito, California and is affiliated with UCSF Medical Center. A founding member of IPWSO and Past President, Susie is also a serving board member of PWSA | USA. Leopold Curfs Dept. of Clinical Genetics, University Maastricht/Academic Hospital, Maastricht, The Netherlands….