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…one umbrella. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS. Information for Professional Caregivers Sharing international knowledge among professional service providers throughout the world. What is PWS? Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are…

…below. Growth Hormone in Adults Consensus Statement Statement published in Orphanet Journal of Rare Diseases, February 2021 Further resources: Growth Charts   Growth charts: 0-36 Months To generate and report standardized growth curves for weight, length, head circumference, weight/length, and BMI for non– growth hormone–treated white infants (boys and girls) with Prader-Willi syndrome (PWS) between and 36 months of age. The goal was to monitor growth and compare data with other infants with PWS. Growth…

…guide. We must strive to establish consistency and reliability in the person with PWS’s life, familiarising the wider family and other carers with the person’s needs, spending quality time together, and showing unwavering support. With patience, education, and a commitment to the person’s well-being, we can navigate the intricate path of caring for a person with Prader-Willi syndrome after the passing of their parents. This article was written by IPWSO’s Famcare Board. 2023 Print Friendly…

…is held in Taipei, Taiwan. Dr Suzanne Cassidy (USA) becomes IPWSO President. 2007 The sixth IPWSO conference is held in Cluj-Napoca, Romania. 2004 The fifth IPWSO conference is held in Christchurch, New Zealand. Pam Eisen (USA) becomes President. 2001 The fourth IPWSO conference is held in Minnesota, USA. 1998 The third IPWSO conference is held in Lido de Jesolo, Italy. It is attended by 250 delegates from 24 countries. Following a competition between members an…