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Sexual Development Without sex hormone therapy, sexual maturity in PWS does not fully develop. The child with PWS will begin puberty, usually around the age of 10-12, but not complete it. Known as ‘precocious puberty’ there will be a development in body hair, some breast development in girls and a degree of penile development in boys. Menstruation, if it occurs at all, is often scanty and irregular – although some females do have regular periods,…

…Videos Research on specialist services for people with PWS Scholarships Depending on availability of funds, IPWSO offers scholarships to attend our conferences. Contact us to keep up to date with conferences, workshops, meetings, and scholarship grants. Future conferences Has your Association thought about hosting an IPWSO conference? In the past these have been held in the Netherlands, Norway, Italy, USA, New Zealand, Romania, Taiwan, UK, Canada, Cuba and most recently Ireland. In 2025 we are…

…capital “P” for Prader, capital “W” for Willi and small “s” for syndrome. Prader and Willi are joined by a hyphen, e.g. “Mary has Prader-Willi syndrome.” ​It is often abbreviated to “PWS”.​ Avoid oversimplifications, such as describing PWS only in terms of hyperphagia and/or obesity. Prader-Willi syndrome is a complex genetic disorder not reducible to a single characteristic. Prader-Willi syndrome is a complex genetic disorder that is usually not hereditary. It can occur in any…

…Syndrome (PWS)” Presented at the IPWSO Caregivers’ ECHO on September 22, 2021. In this session we focused on 3 areas of transition: Medical, Social and Environment. We shared examples of experience of transition, and strategies for managing transition to suit the individual with PWS. The PDF of this PowerPoint is available here. To read the Q&A following the session please refer to the abridged abstract summary. Damien Jones, Interaction Disability Services, Australia “Prader-Willi Syndrome (PWS)…

…to evaluate compulsions in PWS? • What are the challenges to making a diagnosis of OCD in PWS? • Best practices – interview vs. observation vs. questionnaire. • Are we measuring symptoms or making a diagnosis in PWS? Find a full overview of the meeting here. The PDF of this presentation is available here. Deepan Singh, MD, Child, Adolescent, & Adult Psychiatrist, Vice-Chair of Ambulatory Psychiatry, Maimonides Medical Center, New York, USA “Neurobiology of Prader-Willi…

…easily. Appearance of such wounds and bruises may erroneously lead to suspicion of physical abuse.   Acknowledgement: We thank Consensus Support Services for an initial draft of this document which has been edited by IPWSO. January 2022, revised August 2022.     One-page printable version Please use the button below to download a one-page printable version of this important guide. What is PWS? Prader-Willi syndrome is a complex genetic condition. Various studies have shown that…