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…Caregivers Sharing international knowledge among professional service providers throughout the world. What is PWS? Free Diagnosis Find support in my country How we can help IPWSO is committed to supporting all people with Prader-Willi syndrome and their families, whatever their needs, and wherever they live. Whether you are looking for answers to your questions, information about diagnosis or support to build expertise in your own country, you are in the right place. Latest News Find…

…to redirect to a safe topic that everyone knows is true, like “Tell me about your sports memorabilia collection” or “Tell me about the first time that you went to a rugby game?” Or, if in a residential or school environment, teach staff an intervention “That’s an interesting story, but I’ll have to check with your mom.” or, “It must make you feel important to think that you’re related to a sports star.” It’s not…

…unique neuropsychological strengths and vulnerabilities. Strengths include good long-term memory, visual processing, shape discrimination, attention and perseverance for preferred activities. The environment has to consider that people with PWS can have short-term memory deficits, deficits in dichotic listening, fine motor deficits, sensory perception and integration problems, deficits in simultaneous and sequential processing, poor time sense, cognitive inflexibility and rigidity, poor coping strategies. deficits by learning from mistakes, they need support perceiving the emotions of others,…

…consistent balance of meals and snacks. This means all extra food sources need to remain inaccessible to the person with PWS. Kitchens, pantries, refrigerators, food cupboards, fruit bowls, garbage bins, shops, relatives’ homes, friends’ homes, neighbours’ homes, work places, day programmes, food courts, shops, church functions, sporting events and independent travel all provide the opportunity for “extra” energy intake. Most people with PWS will take food or money to buy food, or eat leftover food…