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…involved in small businesses also. It seems more likely that people with PWS will work fewer days per week and fewer hours per day compared to the average population. It appears that most adults with PWS would like to work – it is important for their self-esteem and mental wellbeing. However, opportunities can be difficult to find and a lot of support and training is required to create suitable and sustainable environments for people with…
…world could exchange information and support and have a united global voice under one umbrella. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS. Information for Professional Caregivers Sharing international knowledge among professional service providers throughout the world. What is PWS? Translated Guides Find support in my country…
…world could exchange information and support and have a united global voice under one umbrella. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS. Information for Professional Caregivers Sharing international knowledge among professional service providers throughout the world. What is PWS? Translated Guides Find support in my country…
…exchange information and support and have a united global voice under one umbrella. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS. Information for Professional Caregivers Sharing international knowledge among professional service providers throughout the world. PWSA | USA Medical Alerts Medical Alerts in your language Consensus Documents…
…care for people with PWS. We have also used this grant to translate key informational videos about PWS made at our recent conference into Arabic and Mandarin. These videos are presented by international experts and provide key information on issues affecting people with PWS. Please help us to share this information by forwarding these links on to people in your network. 国际普拉德-威利综合征组织 (IPWSO) 荣获了 Global Genes 所赞助的“2022 年卫生公平之罕见病患者影响补助金”。有赖于这个奖项，IPWSO 名为“为讲阿拉伯语、土耳其语和普通话的人士开发普拉德–威利综合征教育资源”的项目得以成功完成。 我们希望这些翻译版文件能帮助更多专业人士和家庭为普拉德-威利综合征患者提供最好的护理。 在我们最近的会议中，一些重要信息被制作成了影片。我们利用这笔补助金将这些影片翻译成了阿拉伯语和普通话。这些影片由国际专家呈现，为影响普拉德-威利综合征患者的问题提供了重要信息。 请将上述文件转发给您交际网络中的人士，以便帮助我们分享这些信息。 饮食和营养 Diet…
…Information for Medical Professionals International Community IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS. Information for Professional Caregivers Sharing…
…exchange information and support and have a united global voice under one umbrella. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS. Information for Professional Caregivers Sharing international knowledge among professional service providers throughout the world. PWSA | USA Medical Alerts Medical Alerts in your language Consensus Documents…
…was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS. Information for Professional Caregivers Sharing international knowledge among professional service providers throughout…
…PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS. Information for Professional Caregivers Sharing international knowledge among professional service providers throughout the world. What is…
Find useful guides, research and information to help families manage PWS.
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome.