Ireland, 2022
11th International Prader-Willi Syndrome Conference
Limerick, Ireland, 6-10 July 2022
In 2022 we held our 11th international conference, in partnership with our local hosts Prader-Willi Syndrome Association Ireland (PWSAI). The conference took place from 6 to 10 July at the University of Limerick in Ireland.
519 delegates attended the conference (197 Irish delegates and 322 international delegates). We were delighted to welcome delegates from 38 different countries.
The conference was made up of six programmes, including the Children’s Programme and the Stepping Up Adults Symposium (or SUAS meaning “up” in Irish!), plus the abstracts gallery, social events, exhibitors as well as numerous opportunities to network.
We were delighted to welcome 138 unique presenters across 64 conference sessions.
The conference was supported by 20 Sponsors and Charitable Contributors.
We also held our General Assembly and elected our new Board.
A real highlight for us was having our Honorary President Jean Phillips-Martinsson with us all week. Jean’s passionate speech to the Gala Dinner reminded everyone why we were all there and the importance of continuing our work to share information and knowledge about PWS around the world.
Thanks also to Friends of IPWSO for supporting ten delegates from various backgrounds and countries to attend. To those delegates – we hope you all enjoyed your time and that the information you gained will be useful to others back home too.
We made some special films at conference to highlight a few key areas of research and expertise that families are interested in. These films will be released later in the year, so keep an eye on our newsletters and website for the details. Do keep sharing your own photos and videos from conference too, tag us on social media!
Clinical and Scientific Programme
Download a copy of the 2-day programme
Clinical and Scientific Booklet of Proceedings: available on request
Professional Providers and Caregivers Programme
Download the Programme Overview
Professional Providers and Caregivers Booklet of Proceedings: available on request
Parents Programme
Download the Parents Programme Overview
Parents Booklet of Proceedings: available on request
Interdisciplinary Programme and Booklet of Proceedings
Download the Interdisciplinary Programme
Booklet of Proceedings for the Interdisciplinary Programme: available on request
10th International Conference: Cuba, 2019
Find out more about our conference held in Havana.
Previous conferences
2022: Ireland, 2019: Cuba, 2016: Canada, 2013: UK, 2010: Taiwan, 2007: Romania, 2004: New Zealand, 2001: USA, 1998: Italy, 1995: Norway, 1991: Netherlands.
Scholarships
Depending on availability of funds, IPWSO offers scholarships to attend our conferences. Contact us to keep up to date with conferences, workshops, meetings, and scholarship grants.
Interested in hosting PWS 2028?
Since its first Conference in 1991, IPWSO Conferences have been held in 11 countries on 5 continents. Whatever the size of your country or PWS Association, if you would like to host the 2028 IPWSO Conference we would love to hear from you. You can find out more about what hosting an IPWSO Conference entails and how to submit a bid by downloading the Guidance Document and the Budget Template.
Bids will be accepted until 14 February 2025.
< Back to News & Events
International Community
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for
Families
Find useful guides, research and information to help families manage PWS.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
Information for
Professional Caregivers
Sharing international knowledge among professional service providers throughout the world.
What is PWS?
Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome and it affects all races and both sexes equally.
Free Diagnosis
If you suspect your patient has Prader-Willi syndrome, based on the clinical signs and symptoms, but are unable to access testing in your country, then you may be able to access free testing.
Find support in my country
We have contacts in many countries and regions around the world.