Our People
Honorary President
Board of Trustees
Staff
Advisers
Boards and Committees reporting to the Board of Trustees
Clinical and Scientific Advisory Board
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- Chair: Daniel J. Driscoll MD, PhD
- Membership
- Terms of Reference
Finance Committee
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- Chair: Craig Moore
Fundraising Committee
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- Chair: Marguerite Hughes
Investment Commitee
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- Chair: Scott Arant
Nominations Committee
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- Chair: Colin Pearson
Committees reporting to the Chief Executive Officer
Grants Committee
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- Chair: Lynn Garrick
International Conference Committee
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- Chair: To be confirmed
Online Events Committee
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- Chair: Karin Clarke
People with PWS Committee
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- Chair: Svetlana Labun
Publication and Communication Committee
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- Chair: François Besnier
Research and Clinical Trials Committee
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- Chair: Tony Holland
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International Community
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for
Families
Find useful guides, research and information to help families manage PWS.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
Information for
Professional Caregivers
Sharing international knowledge among professional service providers throughout the world.
What is PWS?
Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome and it affects all races and both sexes equally.
Free Diagnosis
If you suspect your patient has Prader-Willi syndrome, based on the clinical signs and symptoms, but are unable to access testing in your country, then you may be able to access free testing.
Find support in my country
We have contacts in many countries and regions around the world.