Our Blog
Covering issues, stories and the latest news regarding Prader-Willi syndrome.
European Hormone Day returns for a third time on Wednesday, 24 April, uniting the endocrine community across Europe and beyond to raise awareness of the vital role of hormones in health and disease – #BecauseHormonesMatter.
Our mission at IPWSO is to support people with PWS and their families all over the world to live their best life and reach their potential. As part of their visit to Alger our volunteers had set up with Prof. Asmahane Ladjouze and Dr. Yasmina Ouarezki, a separate meeting for families of people
IPWSO Chief Executive Officer, Marguerite Hughes, shares details on IPWSO's new Strategic Plan and how it was developed.
Andrea's mom Karen tell us about the tough times they have faced as a family, but how Andrea is now doing well as she turns 40 this year.
Tony Holland explains why the role of IPWSO President plays an important and interesting part of our special organisation.
IPWSO President Tony Holland recently attended the PWSA | USA National Convention, where he made a presentation and met many PWS families and professionals.
International Community
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.