Volunteer
Applications Invited for IPWSO Trustee Positions 2025 – 2028
Are you interested in using your skills to help people with PWS internationally? Would you welcome an opportunity to learn about needs in different parts of the world, as well as emerging research and new treatments?
We are recruiting Trustees to join our Board for a 3-year term beginning in June 2025. Read more in our Guidance Notes and to apply, please complete this form and return by 14 October 2024.
Other ways to get involved
There are many ways to get involved with IPWSO’s work from joining our Trustees or Boards to helping with a project or fundraising. We also have opportunities to volunteer at our conferences and events.
If you would like to use your skills to support us please get in touch! Email office@ipwso.org.
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International Community
IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella.
Information for
Families
Find useful guides, research and information to help families manage PWS.
Information for Medical Professionals
The latest medical and scientific research and information, plus guides into common medical issues affecting people with PWS.
Information for
Professional Caregivers
Sharing international knowledge among professional service providers throughout the world.
What is PWS?
Prader-Willi syndrome is a complex genetic condition. Various studies have shown that between 1 in 15,000 to 25,000 children are born with Prader-Willi syndrome and it affects all races and both sexes equally.
Free Diagnosis
If you suspect your patient has Prader-Willi syndrome, based on the clinical signs and symptoms, but are unable to access testing in your country, then you may be able to access free testing.
Find support in my country
We have contacts in many countries and regions around the world.