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…overweight can cause dilatation of blood vessels and lead to a drop in blood pressure. Falling asleep in a bath is a high risk for someone with PWS, especially if they have sleep apnoea. Make sure that all areas are properly cleaned including; face; ears; neck; underarms; chest; back; bottom; legs; arms; between the buttocks; feet; between the toes and don’t let them miss any of those hard to reach places. (A body chart on…

…Meeting with professionals / 専門家との面談に関するのガイダンス プラダー・ウィリー症候群と診断されたお子さんのご両親のために書かれたものです。 Guide to health: checklist / 「健康」チェックリスト Guide to Basics of a Healthy Adult Life / PWS を持つ成人の健康的な生活に欠かせないポイントについて Guide to confabulation (story telling in PWS) / PWS を持つ人の作話 Guide to coping with change in PWS / PWS を持つ人の「変更への対応」 Guide to “I want the same” / PWS を持つ人に、「どうしてわたしは他の人と同じものをもらっては（同じことをして は）いけないの？」と聞かれたら、あなたはどう答えますか？ • Medical Alerts Handbook / Medicīniski brīdinājumi Videos 关于PWS的重要医学事实 One page PWS medical facts 0-3岁PWS患儿的医疗护理 Guides for Doctors: Infants (age 0-3) with…

This Report represents a landmark initiative by the IPWSO Mental Health Network (IMHN) to improve understanding and support for the well-being of children and adults with PWS, and their mental health and behavioural needs. IPWSO was established by parents and professionals, working together to solve common issues affecting people with Prader-Willi syndrome around the world. We are here for parents, families associations, caregivers and professionals, and we can answer your questions. Just ask. We are…

…unique neuropsychological strengths and vulnerabilities. Strengths include good long-term memory, visual processing, shape discrimination, attention and perseverance for preferred activities. The environment has to consider that people with PWS can have short-term memory deficits, deficits in dichotic listening, fine motor deficits, sensory perception and integration problems, deficits in simultaneous and sequential processing, poor time sense, cognitive inflexibility and rigidity, poor coping strategies. deficits by learning from mistakes, they need support perceiving the emotions of others,…

…consistent balance of meals and snacks. This means all extra food sources need to remain inaccessible to the person with PWS. Kitchens, pantries, refrigerators, food cupboards, fruit bowls, garbage bins, shops, relatives’ homes, friends’ homes, neighbours’ homes, work places, day programmes, food courts, shops, church functions, sporting events and independent travel all provide the opportunity for “extra” energy intake. Most people with PWS will take food or money to buy food, or eat leftover food…

…another person. Some examples of problematic rituals and obsessions include: Asking repetitive questions or repeating the same statement over and over Hoarding Ordering and arranging objects Refusing to throw out old clothes Collecting cheap items such as newspapers, pamphlets, pens, magazines or hairclips to the point where their bedroom is cluttered Squeezing a shampoo or shower gel bottle too many times, so using “too much” Excessive use of tissues, toilet paper, sanitary pads Wanting to…

…your support. Please consider making a donation. < Back to News & Events International Community IPWSO was established so that PWS associations, families, clinicians and caregivers around the world could exchange information and support and have a united global voice under one umbrella. Information for Families Find useful guides, research and information to help families manage PWS. Information for Medical Professionals The latest medical and scientific research and information, plus guides into common medical issues…